Locals urged to host 'Drink Tea for MND' fundraising gatherings
The Irish Motor Neurone Disease Association (IMNDA) is making a final call for tea lovers to register for its annual 'Drink Tea for MND' campaign.
The initiative, now in its 16th year, invites individuals, businesses, and communities to come together, enjoy a cup of tea, and raise funds to support people living with Motor Neurone Disease (MND).
As the IMNDA marks 40 years in 2025, this simple yet impactful campaign continues to unite tea drinkers nationwide, with every tea party making a difference for families affected by MND.
Tony Ryan and Amanda Lillis from County Limerick, ambassadors for this year’s campaign, are highlighting the importance of the IMNDA’s work by sharing their personal story.
Tony, also known as Schillaci, was diagnosed with MND in April 2022, after a year-long journey of tests and referrals.
Tony and Amanda, along with their four children—Corey (28), Tonieka (25), Zekeisha (17), and Zantianna (12)—are determined to make the most of every day despite the challenges of living with MND.
Amanda shared: "MND is a cruel disease that takes so much away, yet we are determined to make the most of every day. The hardest part for Tony is not being able to do the things he used to do on his own. But the support we’ve received from the IMNDA has been a lifeline.
"It's not just practical help but also emotional support and the assistance with equipment that truly makes a difference. We need more awareness, so others like us can find the help they need.
"When we recently went to buy clothes, we had a humiliating experience where we were told that Tony couldn’t bring someone into the fitting room to help him. It's an example of how MND isn’t always visible to others, but the struggles are real.
"We hope that by sharing our story, more people will understand MND and why fundraising is so crucial. The IMNDA has been a key part of our journey, and we are so grateful for all they do."
The IMNDA relies heavily on fundraising to sustain over 85% of its income, funding vital support services including care grants, counselling, and equipment to improve the quality of life for those affected by MND.
Members of the public can get involved by registering their 'Drink Tea for MND' event on the IMNDA's website. The tea parties can be hosted at any point this Spring in order to help raise vital funds.
For more information, or to register your tea party, visit IMNDA's Drink Tea for MND page: https://www.imnda.ie/event/drink-tea-for-mnd/home